Skip to main content

Wednesday Late Afternoon Update

We're counting down to the Lumbar Drain. Aimee is hoping it will help with her pain. We got her beautiful auburn hair brushed out and in a pony tail on top of her head and braided. She just got another dose of morphine for the pain and they're going to give her some platelets before the procedure. I'm really praying this goes off without a hitch so she can do it with the local instead of general anesthesia. She's being so brave and I keep telling her she's a little warrior princess fighting the pain and to get better.

We found out she has tested positive for some blood disorders. We're going to be adding a hematologist to the treatment team. What the tests amount to is that she was predisposed to form clots because of the blood disorders. I guess it's just one more piece of the puzzle.

So far the test for Lupas have come back negative though so I'm glad of that.

~Wendee

Comments

  1. I'll keep her in my prayers...all of you guys! Those lps are not fun at all, but if they can drain enough off it should help her feel better. What a strange ride, eh?

    Thank goodness that the lupus test is negative. That's at least a start! Praying for you guys! She's a tough cookie!

    ReplyDelete
  2. Wendee, so sorry to hear about your loss. Your family will be in our thoughts and prayers. May God wrap his arms tightly around you and your family right now and may you feel his love and strength.

    ReplyDelete

Post a Comment

Popular posts from this blog

Friday Update

I'm sorry if we didn't get you called and you find out this way, but my sweet Aimee didn't surive. She's still on a respirator so her heart is beating but she's not with us. I'm really struggling right now. We haven't told our younger kids yet and I need to get some sleep so I can think. I'll try to post again later today.

later, but still early Friday morning

While the procedure went well and they were able to clear some of the clotting away, all is not done. A CT scan after the procedure showed that some of the key clots were cleared, but there was still a lot of clots and more bleeding. There pressure was high enough that bleeding continued in the spinal cortex region. At one point, after being moved back to the critical care unit, Aimee had a heart attack because the pressure in her head was still too high. The doctors were there and her blood pressure dropped to 0 for only a few seconds before they were able to assist the heart. At that point, they decided that the best thing to reduce the pressure was medicate her into a deep coma. That is where things are right now. Aimee appears to be resting peacefully as the doctors watch. It is now a time to wait and see what will happen next. As one Doctor put it, she is in the woods and we are taking things hour by hour. We are hoping and praying for the best.

Monday's Updates

I thought it would be much easier to update everyone using a blog than to try to call and talk to everyone about what is going on. I feel really grateful for all the support you've all given in calling and emailing and texting. I'm sorry I haven't been as responsive as I wish I could have. Things have been very crazy! So if you don't know what's been going on here are the basics. Aimee has been having migraines for a couple months and they've been escalating. It's been quite debilitating and she's missed lots of school because of the pain she's been in. We hadn't been able to find any answers as to what was causing the headaches or how to stop them. Yesterday afternoon she became very disoriented, her speech was slurred, she was seeing double, was dizzy and couldn't stand on her own. I took her to the ER and after doing a CT scan they found a subdural hematoma (she has a very small bleed in her brain). Sunday night I rode with her in t...