We're counting down to the Lumbar Drain. Aimee is hoping it will help with her pain. We got her beautiful auburn hair brushed out and in a pony tail on top of her head and braided. She just got another dose of morphine for the pain and they're going to give her some platelets before the procedure. I'm really praying this goes off without a hitch so she can do it with the local instead of general anesthesia. She's being so brave and I keep telling her she's a little warrior princess fighting the pain and to get better.
We found out she has tested positive for some blood disorders. We're going to be adding a hematologist to the treatment team. What the tests amount to is that she was predisposed to form clots because of the blood disorders. I guess it's just one more piece of the puzzle.
So far the test for Lupas have come back negative though so I'm glad of that.
~Wendee
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I'm sorry if we didn't get you called and you find out this way, but my sweet Aimee didn't surive. She's still on a respirat...
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I thought that as time went on it would get easier and I wouldn't hurt so much, but honestly it's getting harder. It seems wrong to ...
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The last few days have been really hard. I am trying to "put on a happy face" in pubic (social media, in person, etc.). It's n...
I'll keep her in my prayers...all of you guys! Those lps are not fun at all, but if they can drain enough off it should help her feel better. What a strange ride, eh?
ReplyDeleteThank goodness that the lupus test is negative. That's at least a start! Praying for you guys! She's a tough cookie!
Thanks Vicki!
ReplyDeleteWendee, so sorry to hear about your loss. Your family will be in our thoughts and prayers. May God wrap his arms tightly around you and your family right now and may you feel his love and strength.
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