Skip to main content

Wednesday Late Afternoon Update

We're counting down to the Lumbar Drain. Aimee is hoping it will help with her pain. We got her beautiful auburn hair brushed out and in a pony tail on top of her head and braided. She just got another dose of morphine for the pain and they're going to give her some platelets before the procedure. I'm really praying this goes off without a hitch so she can do it with the local instead of general anesthesia. She's being so brave and I keep telling her she's a little warrior princess fighting the pain and to get better.

We found out she has tested positive for some blood disorders. We're going to be adding a hematologist to the treatment team. What the tests amount to is that she was predisposed to form clots because of the blood disorders. I guess it's just one more piece of the puzzle.

So far the test for Lupas have come back negative though so I'm glad of that.

~Wendee

Comments

  1. OriongazingJanuary 11, 2012 at 7:50 PM

    I'll keep her in my prayers...all of you guys! Those lps are not fun at all, but if they can drain enough off it should help her feel better. What a strange ride, eh?

    Thank goodness that the lupus test is negative. That's at least a start! Praying for you guys! She's a tough cookie!

    ReplyDelete
  2. Wendee PeaseJanuary 11, 2012 at 8:26 PM

    Thanks Vicki!

    ReplyDelete
  3. Chipper62January 14, 2012 at 12:19 PM

    Wendee, so sorry to hear about your loss. Your family will be in our thoughts and prayers. May God wrap his arms tightly around you and your family right now and may you feel his love and strength.

    ReplyDelete

Post a Comment

Popular posts from this blog

Friday Update

I'm sorry if we didn't get you called and you find out this way, but my sweet Aimee didn't surive. She's still on a respirator so her heart is beating but she's not with us. I'm really struggling right now. We haven't told our younger kids yet and I need to get some sleep so I can think. I'll try to post again later today.
55 comments
Read more

Aimee's Marker

It's been awhile since I've posted. Things are still up and down for me. I sometimes feel guilty when I have good days. I think that is odd, but I try to remind myself that Aimee wouldn't want me to be miserable the rest of my life. It just feels like a betrayal to have a good day. I know that isn't true and I do combat those thoughts it's just another part of my grieving process. Next Thursday is Aimee's birthday. She would have been 18 years old. At times I feel cheated, but I know somehow, someday God will make it all right. We are going to do Aimee's temple work on her birthday. I'm really glad we're going to do something so positive on such a difficult day. I feel sad that it is the last thing I can do for her and in some ways want to save it for later, but I feel like this is the best thing for all of us. I don't want to stall her eternal progression and I think it will be wonderful to feel her so close in the temple that day! On Monday...
3 comments
Read more

1 Year Mark

It's really hard for me to believe that 1 year has gone by. The last week was really hard. Two weeks ago I started having nightmares reliving the events of the last week of Aimee's life on Earth. After about a week of that I started getting better sleep without the nightmares, but still not really that great. During the day that week I was having flashbacks to what we were doing at that time a year ago. As you can imagine all of this really piqued my emotions. It was frustrating because logically I know I can't change the events and these nightmares and daymares weren't helping, but they'd come despite my knowledge of their futility. It has gotten better. Saturday we went to the cemetery to leave some flowers at Aimee's spot. We dug down about a foot and a half to find her marker. If we didn't know exactly where it was and the flowers from Christmas weren't there it would have been really hard to find. The flowers from Christmas were frozen in water ab...
2 comments
Read more