Wednesday's Mid Day Update

Things are going well. Aimee ate part of a chocolate milk shake and some french fries for lunch today. Her doctors want her eating salty foods. So lunch was "just what the doctor ordered". This is the only time I've ever heard of a doctor thinking drinking a milk shake multiple times a day is a good thing.

She's still in the ICU and is quite sedated, but arouses enough to eat and such. She'll probably stay here through today and maybe be moved back to the NTU (neuro trauma unit) tomorrow, but that is dependent on how she does over the next while.

The ophthalmologist examined her a few minutes ago and her vision in her left eye has worsened. They're using her eye exams to help them know how the pressure in her head is doing. It looks like it hasn't come down enough to take the pressure off her optic nerve which is a concern. They're talking about doing a lp (lumbar puncture/spinal tap) or a lumbar drain but they've been discussing that for the last day or so. It's sounding more like they'll do that, but we'll see.

btw her diagnosis is sinus venus thrombosis (blood clot in the veins exiting the brain) and nerve 6 palsey in both eyes (the nerve that moves her eyes is not working right which is causing double vision, etc).

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Friday Update

I'm sorry if we didn't get you called and you find out this way, but my sweet Aimee didn't surive. She's still on a respirator so her heart is beating but she's not with us. I'm really struggling right now. We haven't told our younger kids yet and I need to get some sleep so I can think. I'll try to post again later today.

Aimee's Marker

It's been awhile since I've posted. Things are still up and down for me. I sometimes feel guilty when I have good days. I think that is odd, but I try to remind myself that Aimee wouldn't want me to be miserable the rest of my life. It just feels like a betrayal to have a good day. I know that isn't true and I do combat those thoughts it's just another part of my grieving process. Next Thursday is Aimee's birthday. She would have been 18 years old. At times I feel cheated, but I know somehow, someday God will make it all right. We are going to do Aimee's temple work on her birthday. I'm really glad we're going to do something so positive on such a difficult day. I feel sad that it is the last thing I can do for her and in some ways want to save it for later, but I feel like this is the best thing for all of us. I don't want to stall her eternal progression and I think it will be wonderful to feel her so close in the temple that day! On Monday...

Video of Aimee Singing

I thought that as time went on it would get easier and I wouldn't hurt so much, but honestly it's getting harder. It seems wrong to me that life can just go on as usual without Aimee here. I'm finding joy here and there, but it is all mixed in with sorrow. It's odd to me that such opposite emotions can coexist. I want to remember the happy times with Aimee and not focus so much on the absence, but that doesn't always work so well. Today I was looking at old videos and decided to edit one and post it here. Last year at Herriman High Aimee was in the Theater Showcase. She was so excited and chose to sing "I Know it's Today" from Shrek the Musical. Jann Boyer , Aimee's voice teacher, helped her pick out the song. We had fun going to Hale Theater's costume rental site and picking out the dress she wore. She also had some last minute rehearsals with Jann that she loved! Aimee did an amazing job performing this song! She has such a beautiful vo...

Life is a Journey...

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