Skip to main content

Wednesday's Mid Day Update

Things are going well. Aimee ate part of a chocolate milk shake and some french fries for lunch today. Her doctors want her eating salty foods. So lunch was "just what the doctor ordered". This is the only time I've ever heard of a doctor thinking drinking a milk shake multiple times a day is a good thing.

She's still in the ICU and is quite sedated, but arouses enough to eat and such. She'll probably stay here through today and maybe be moved back to the NTU (neuro trauma unit) tomorrow, but that is dependent on how she does over the next while.

The ophthalmologist examined her a few minutes ago and her vision in her left eye has worsened. They're using her eye exams to help them know how the pressure in her head is doing. It looks like it hasn't come down enough to take the pressure off her optic nerve which is a concern. They're talking about doing a lp (lumbar puncture/spinal tap) or a lumbar drain but they've been discussing that for the last day or so. It's sounding more like they'll do that, but we'll see.

btw her diagnosis is sinus venus thrombosis (blood clot in the veins exiting the brain) and nerve 6 palsey in both eyes (the nerve that moves her eyes is not working right which is causing double vision, etc).

Comments

Post a Comment

Popular posts from this blog

Friday Update

I'm sorry if we didn't get you called and you find out this way, but my sweet Aimee didn't surive. She's still on a respirator so her heart is beating but she's not with us. I'm really struggling right now. We haven't told our younger kids yet and I need to get some sleep so I can think. I'll try to post again later today.
55 comments
Read more

Aimee's Marker

It's been awhile since I've posted. Things are still up and down for me. I sometimes feel guilty when I have good days. I think that is odd, but I try to remind myself that Aimee wouldn't want me to be miserable the rest of my life. It just feels like a betrayal to have a good day. I know that isn't true and I do combat those thoughts it's just another part of my grieving process. Next Thursday is Aimee's birthday. She would have been 18 years old. At times I feel cheated, but I know somehow, someday God will make it all right. We are going to do Aimee's temple work on her birthday. I'm really glad we're going to do something so positive on such a difficult day. I feel sad that it is the last thing I can do for her and in some ways want to save it for later, but I feel like this is the best thing for all of us. I don't want to stall her eternal progression and I think it will be wonderful to feel her so close in the temple that day! On Monday...
3 comments
Read more

1 Year Mark

It's really hard for me to believe that 1 year has gone by. The last week was really hard. Two weeks ago I started having nightmares reliving the events of the last week of Aimee's life on Earth. After about a week of that I started getting better sleep without the nightmares, but still not really that great. During the day that week I was having flashbacks to what we were doing at that time a year ago. As you can imagine all of this really piqued my emotions. It was frustrating because logically I know I can't change the events and these nightmares and daymares weren't helping, but they'd come despite my knowledge of their futility. It has gotten better. Saturday we went to the cemetery to leave some flowers at Aimee's spot. We dug down about a foot and a half to find her marker. If we didn't know exactly where it was and the flowers from Christmas weren't there it would have been really hard to find. The flowers from Christmas were frozen in water ab...
2 comments
Read more