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Wednesday's Mid Day Update

Things are going well. Aimee ate part of a chocolate milk shake and some french fries for lunch today. Her doctors want her eating salty foods. So lunch was "just what the doctor ordered". This is the only time I've ever heard of a doctor thinking drinking a milk shake multiple times a day is a good thing.

She's still in the ICU and is quite sedated, but arouses enough to eat and such. She'll probably stay here through today and maybe be moved back to the NTU (neuro trauma unit) tomorrow, but that is dependent on how she does over the next while.

The ophthalmologist examined her a few minutes ago and her vision in her left eye has worsened. They're using her eye exams to help them know how the pressure in her head is doing. It looks like it hasn't come down enough to take the pressure off her optic nerve which is a concern. They're talking about doing a lp (lumbar puncture/spinal tap) or a lumbar drain but they've been discussing that for the last day or so. It's sounding more like they'll do that, but we'll see.

btw her diagnosis is sinus venus thrombosis (blood clot in the veins exiting the brain) and nerve 6 palsey in both eyes (the nerve that moves her eyes is not working right which is causing double vision, etc).

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Friday Update

I'm sorry if we didn't get you called and you find out this way, but my sweet Aimee didn't surive. She's still on a respirator so her heart is beating but she's not with us. I'm really struggling right now. We haven't told our younger kids yet and I need to get some sleep so I can think. I'll try to post again later today.

later, but still early Friday morning

While the procedure went well and they were able to clear some of the clotting away, all is not done. A CT scan after the procedure showed that some of the key clots were cleared, but there was still a lot of clots and more bleeding. There pressure was high enough that bleeding continued in the spinal cortex region. At one point, after being moved back to the critical care unit, Aimee had a heart attack because the pressure in her head was still too high. The doctors were there and her blood pressure dropped to 0 for only a few seconds before they were able to assist the heart. At that point, they decided that the best thing to reduce the pressure was medicate her into a deep coma. That is where things are right now. Aimee appears to be resting peacefully as the doctors watch. It is now a time to wait and see what will happen next. As one Doctor put it, she is in the woods and we are taking things hour by hour. We are hoping and praying for the best.

Tuesday's Early Morning Update

The radiologists reviewed the MRIs and they now think that it doesn't appear that she has too much cerebral spinal fluid. Sunday they thought that was a subdural hematoma (small bleed in between the brain and skull). They now think that the vessels that take the blood away from the brain are clogged with a clot. They think that Aimee was not drinking enough water recently and the dehydration caused the blood to thicken in those vessels. This means that there is plenty of blood going into the brain, but it's having a hard time leaving which again is causing pressure. Their plan is to keep her on iv fluids and get her really hydrated and possibly start some blood thinners tomorrow. They aren't planning on doing a spinal tap at this point, but that could change.