Skip to main content

Factor V Leiden

Today I found out that I tested positive for the blood clotting disorder called Factor V Leiden. This is one of the blood disorders that Aimee was diagnosed with in the last few days of her life. Garrett and Victoria tested normal. Aaron also tested positive for Factor V Leiden and his Protein S numbers were low.

We're seeing the head of hematology tomorrow morning at Primary Children's Medical Center. I'm hoping to get more answers and hopefully some reassurance that there is preventative treatment.

My Mom found an online resource that I found very informative here: http://www.stoptheclot.org/documents/FactorVLeiden-lw.pdf

I'm trying not to let my mind run wild with worries about these disorders. I've been reading other articles on the web and am not sure how to put this all together. I think I just need to trust the Lord and work to learn what I can do to help keep my family healthy.

~Wendee

Comments

  1. Hi Wendee ,

    I work with Garrett from Minnesota . I had been following you . I just want to let you know that Mat 8:17 says that Jesus took all our sicknesses and diseases . I just want to believe with you that He is the Healer and He is able to heal you from all these stuff only do not worry . Trust in Him and I believe He will .
    David Sam
    Child of God

    ReplyDelete

Post a Comment

Popular posts from this blog

Friday Update

I'm sorry if we didn't get you called and you find out this way, but my sweet Aimee didn't surive. She's still on a respirator so her heart is beating but she's not with us. I'm really struggling right now. We haven't told our younger kids yet and I need to get some sleep so I can think. I'll try to post again later today.

later, but still early Friday morning

While the procedure went well and they were able to clear some of the clotting away, all is not done. A CT scan after the procedure showed that some of the key clots were cleared, but there was still a lot of clots and more bleeding. There pressure was high enough that bleeding continued in the spinal cortex region. At one point, after being moved back to the critical care unit, Aimee had a heart attack because the pressure in her head was still too high. The doctors were there and her blood pressure dropped to 0 for only a few seconds before they were able to assist the heart. At that point, they decided that the best thing to reduce the pressure was medicate her into a deep coma. That is where things are right now. Aimee appears to be resting peacefully as the doctors watch. It is now a time to wait and see what will happen next. As one Doctor put it, she is in the woods and we are taking things hour by hour. We are hoping and praying for the best.

Monday's Updates

I thought it would be much easier to update everyone using a blog than to try to call and talk to everyone about what is going on. I feel really grateful for all the support you've all given in calling and emailing and texting. I'm sorry I haven't been as responsive as I wish I could have. Things have been very crazy! So if you don't know what's been going on here are the basics. Aimee has been having migraines for a couple months and they've been escalating. It's been quite debilitating and she's missed lots of school because of the pain she's been in. We hadn't been able to find any answers as to what was causing the headaches or how to stop them. Yesterday afternoon she became very disoriented, her speech was slurred, she was seeing double, was dizzy and couldn't stand on her own. I took her to the ER and after doing a CT scan they found a subdural hematoma (she has a very small bleed in her brain). Sunday night I rode with her in t...